Who we are?

We joined to support those diagnosed with Panniculitis Alpha-1 Antitrypsin Deficiency. We know that we are few Alpha-1 Panniculitis patients and for this we want to come to the aid of all and to bring to all new information, counseling, support when some are at the beginning of the road in this disease or in certain symptoms. Let’s find out all the stories of other Alfa-1 Panniculitis in order to know and be aware of events that we may not had until now.

We want to share experiences, to find new connections, to feel that we are part of a group and that Alpha-1 Panniculitis is not alone in the hard fight with this disease, a fight that many of us have without to be able to find out more about the fight we are going to have with this disease.